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North American Nonprofits Flash Mob for Scleroderma | ||
By: PR Newswire Association LLC. - 24 Jun 2016 | Back to overview list |
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SAN FRANCISCO and BOSTON and HAMILTON, Ontario, June 24, 2016 /PRNewswire-USNewswire/ -- North America's leading scleroderma advocacy and research organizations are holding a virtual flash mob June 29 to raise awareness of the rare disorder. The social media event takes place on World Scleroderma Day after the nonprofits hosted more than 100 walks, tributes and fundraisers during the month. Scleroderma Foundation, Scleroderma Research Foundation and Scleroderma Society of Canada partnered again this year during June Scleroderma Awareness Month, combining marketing efforts to boost awareness and spark compassion. This is the third consecutive year that the agencies have worked together under the name "Hard word. Harder disease." Their efforts have grown the scleroderma network and boosted online buzz and engagement. New this year is a virtual flash mob through Thunderclap. The partners and supporters worldwide will use the social media tool to share a campaign message at the same time across Facebook and Twitter. On June 29, World Scleroderma Day, the message will encourage people to learn about scleroderma and tell others about the disease. To join the flash mob, visit Thunderclap. The campaign theme touches on the difficulty of the word and the gravity of scleroderma, a rare disease with no known cause or cure. It has run across partner Facebook and Twitter channels (#hardword) throughout the month, with visuals and copy that educate and challenge people to take a pledge to tell one person about the disease. The campaign has also leveraged a blogger network and a microsite, www.HardWord.org, with general information about and links to additional resources. Scleroderma is a crippling autoimmune disorder characterized by a thickening and hardening of the skin that is so severe, it steals away the use of patients' fingers, hands and limbs. As it advances across their bodies, the uncontrolled growth of fibrous tissue can damage patients' hearts, lungs and other organs, often leading to a prolonged and painful death. Scleroderma Foundation Scleroderma Research Foundation Scleroderma Society of Canada Photo - http://photos.prnewswire.com/prnh/20160624/383291
SOURCE Scleroderma Foundation |
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Copyright 2016 PR Newswire Association LLC. | Back to overview list |