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Lung Cancer Patients to Help Medical Community Understand the Side Effects of Immunotherapy Treatment | ||
By: PR Newswire Association LLC. - 19 Jan 2018 | Back to overview list |
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SAN CARLOS, Calif., Jan. 18, 2018 /PRNewswire-USNewswire/ -- The Lung Cancer Registry sponsored by the Bonnie J. Addario Lung Cancer Foundation (ALCF), the American Lung Association's LUNG FORCE and the International Association for the Study of Lung Cancer (IASLC), is joining Adam Dicker, M.D., Ph.D. at Sidney Kimmel Cancer Center, Thomas Jefferson University and Heather Jim, Ph.D. at H. Lee Moffitt Cancer Center and Research Institute, Inc., in a study to learn about side effects of immunotherapy from patients with non-small cell lung cancer (NSCLC) who have undergone therapy with immune checkpoint inhibitors. In addition, the Society for Immunotherapy of Cancer (SITC) will join the collaboration as a project partner to maximize awareness of the registry and this research study to both researchers and patients. Immune checkpoint inhibitors, a form of immunotherapy, have been shown to bring about durable remissions and prolonged survival for patients with NSCLC, but at the cost of toxicity that causes a range of side effects. The goal of this study is to gather information directly from patients and caregivers to better understand what side effects patients have experienced, when side effect symptoms began and how side effects have impacted the patients' quality of life. Results from the study will give doctors a greater understanding of the how immune checkpoint inhibitor toxicities affect patients and allow them to better inform patients considering immunotherapy treatment for NSCLC. "Nearly a quarter million Americans will be diagnosed with lung cancer this year," said Bonnie J. Addario, 14-year lung cancer survivor and founder of the ALCF. "Immunotherapy, along with targeted therapy, has helped transform the treatment of lung cancer over the past decade. Gathering information from patients and passing that knowledge on to other lung cancer patients accurately and quickly is helping patients live longer, which is our goal." The study represents the first collaborative effort since the ALCF and the Lung Association joined forces with the IASLC in December 2017 to expand the Lung Cancer Patient Registry. The registry allows patients to contribute information that improves understanding of lung cancer treatments and enables researchers to use that information to improve patient care and outcomes. "We're inspired by the opportunity to put the Lung Cancer Patient Registry to innovative use," said Harold P. Wimmer, National President and CEO of the American Lung Association. "The patient-provided data used in this new trial will allow us to gain knowledge from patients directly and better inform treatment." "Patient-reported outcomes (PRO's) can help show clinical benefit in reducing disease related symptoms, provide more accurate estimates of toxicity, help model treatment costs and improve symptom management," said Adam P. Dicker, M.D., PhD, Sidney Kimmel Cancer Center, Thomas Jefferson University, Philadelphia, PA . "These toxicities really do have costs, and it's important for patients to know how much out-of-pocket costs they might incur." Lung cancer is the leading cause of cancer-related deaths in the U.S., accounting for one in four cancer deaths each year. The goal behind creating the registry is to speed and improve research by collecting information scientists can use in developing new treatments. In addition, the registry builds a bridge between patients and clinical trials' researchers by enabling researchers to submit proposals to enter clinical trials into a database that patients can search. "When all involved in lung cancer collaborate, patient outcomes improve," said IASLC CEO Fred R. Hirsch, MD, PhD. "Information gathered in the study will be available to patients, their physicians, caregivers and to researchers evaluating the effectiveness of different treatment options." Patients with any form or stage of lung cancer, including patients with NSCLC who are interested in participating in the immunotherapy research study, can join the registry at www.lungcancerregistry.org. There, patients can opt-in to contribute their information, set their contact preferences and compare their experience with lung cancer with others. Patients can choose to receive information about research opportunities or other relevant news as part of their participation. About the Bonnie J. Addario Lung Cancer Foundation About the American Lung Association About International Association for the Study of Lung Cancer About the Society for Immunotherapy of Cancer View original content with multimedia:http://www.prnewswire.com/news-releases/lung-cancer-patients-to-help-medical-community-understand-the-side-effects-of-immunotherapy-treatment-300585039.html SOURCE Bonnie J. Addario Lung Cancer Foundation |
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